There were several photos in this article, follow link at bottom to view.
_______
'Doctors told me it was against the rules to save my premature baby'
By Vanessa Allen and Andrew Levy
Last updated at 7:58 AM on 09th September 2009
Source DailyMail.co.uk
"Doctors left a premature baby to die because he was born two days too early, his devastated mother claimed yesterday.
Sarah Capewell begged them to save her tiny son, who was born just 21 weeks and five days into her pregnancy - almost four months early.
They ignored her pleas and allegedly told her they were following national guidelines that babies born before 22 weeks should not be given medical treatment.
Battle: Sarah Capewell is fighting to have guidelines about caring for very premature babies changed
Miss Capewell, 23, said doctors refused to even see her son Jayden, who lived for almost two hours without any medical support.
She said he was breathing unaided, had a strong heartbeat and was even moving his arms and legs, but medics refused to admit him to a special care baby unit.
Miss Capewell is now fighting for a review of the medical guidelines.
Heartbreak: Sarah Capewell with her daughter Jodi, five
Sarah Capewell is fighting for new guidelines on when infants should be given intensive care after her premature son Jayden (right) was refused treatment
Medics allegedly told her that they would have tried to save the baby if he had been born two days later, at 22 weeks.
In fact, the medical guidelines for Health Service hospitals state that babies should not be given intensive care if they are born at less than 23 weeks.
The guidance, drawn up by the Nuffield Council, is not compulsory but advises doctors that medical intervention for very premature children is not in the best interests of the baby, and is not 'standard practice'.
James Paget Hospital in Norfolk refused to comment on the case but said it was not responsible for setting the guidelines relating to premature births.
A trust spokesman said: 'Like other acute hospitals, we follow national guidance from the British Association of Perinatal Medicine regarding premature births.'
Miss Capewell, who has had five miscarriages, said the guidelines had robbed her son of a chance of life.
Short life: Miss Capewell's son Jayden died two hours after he was born at James Paget Hospital in Gorleston, Norfolk, in October 2008
She said: 'When he was born, he put out his arms and legs and pushed himself over.
A midwife said he was breathing and had a strong heartbeat, and described him as a "little fighter".
I kept asking for the doctors but the midwife said, "They won't come and help, sweetie. Make the best of the time you have with him".'
She cuddled her child and took precious photos of him, but he died in her arms less than two hours after his birth.
Miss Capewell, who has a five-year-old daughter Jodie, went into labour in October last year at 21 weeks and four days after suffering problems during her pregnancy.
She said she was told that because she had not reached 22 weeks, she was not allowed injections to try to stop the labour, or a steroid injection to help to strengthen her baby's lungs.
Instead, doctors told her to treat the labour as a miscarriage, not a birth, and to expect her baby to be born with serious deformities or even to be still-born.
Treasured memories: Pictures of baby Jason's feet and hands
She told how she begged one paediatrician, 'You have got to help', only for the man to respond: 'No we don't.'
As her contractions continued, a chaplain arrived at her bedside to discuss bereavement and planning a funeral, she claims.
She said: 'I was sitting there, reading this leaflet about planning a funeral and thinking, this is my baby, he isn't even born yet, let alone dead.'
After his death she even had to argue with hospital officials for her right to receive birth and death certificates, which meant she could give her son a proper funeral.
Justice for Jayden: His mother is campaigning to change the law
She was shocked to discover that another child, born in the U.S. at 21 weeks and six days into her mother's pregnancy, had survived.
Amillia Taylor was born in Florida in 2006 and celebrated her second birthday last October. She is the youngest premature baby to survive.
Miss Capewell said: 'I could not believe that one little girl, Amillia Taylor, is perfectly healthy after being born in Florida in 2006 at 21 weeks and six days.
'Thousands of women have experienced this. The doctors say the babies won't survive but how do they know if they are not giving them a chance?'
Miss Capewell has won the support of Labour MP Tony Wright, who has backed her call for a review of the medical guidelines. He said: 'When a woman wants to give the best chance to her baby, they should surely be afforded that opportunity.'
What the medical guidelines say...
Guidance limiting care of the most premature babies provoked outrage when it was published three years ago.
Experts on medical ethics advised doctors not to resuscitate babies born before 23 weeks in the womb, stating that it was not in the child's 'best interests'.
The guidelines said: 'If gestational age is certain and less than 23+0 (i.e at 22 weeks) it would be considered in the best interests of the baby, and standard practice, for resuscitation not to be carried out.'
Medical intervention would be given for a child born between 22 and 23 weeks only if the parents requested it and only after discussion about likely outcomes.
The rules were endorsed by the British Association of Perinatal Medicine and are followed by NHS hospitals.
The association said they were not meant to be a 'set of instructions', but doctors regard them as the best available advice on the treatment of premature babies.
More than 80,000 babies are born prematurely in Britain every year, and of those some 40,000 need to be treated in intensive care.
The NHS spends an estimated £1 billion a year on their care.
But while survival rates for those born after 24 weeks in the womb have risen significantly, the rates for those born earlier have barely changed, despite advances in medicine and technology.
Medical experts say babies born before 23 weeks are simply too under-developed to survive, and that to use aggressive treatment methods would only prolong their suffering, or inflict pain.
The guidelines were drawn up by the Nuffield Council on Bioethics after a two-year inquiry which took evidence from doctors, nurses and religious leaders.
But weeks before they were published in 2006, a child was born in the U.S. which proved a baby could survive at earlier than 22 weeks if it was given medical treatment.
Amillia Taylor was born in Florida on October 24, 2006, after just 21 weeks and six days in the womb. She celebrated her second birthday last year.
Doctors believed she was a week older and so gave her intensive care, but later admitted she would not have received treatment if they had known her true age.
Her birth also coincided with the debate in Britain over whether the abortion limit should be reduced.
Some argued that if a baby could survive at 22 weeks then the time limit on abortions should be reduced.
The argument, which was lost in Parliament, followed a cut to the time limit in 1990 when politicians reduced it from 28 weeks to 24 weeks, in line with scientific evidence that foetuses could survive outside the womb at a younger age.
However, experts say cases like Amillia Taylor's are rare, and can raise false expectations about survival rates.
Studies show that only 1 per cent of babies born before 23 weeks survive, and many suffer serious disabilities."
http://www.dailymail.co.uk/news/article-1211950/Premature-baby-left-die-doctors-mother-gives-birth-just-days-22-week-care-limit.html
April 2024 March 2024 February 2024 January 2024 December 2023 November 2023 October 2023 September 2023 August 2023 July 2023 June 2023 May 2023 April 2023 March 2023 February 2023 January 2023 December 2022 November 2022 October 2022 September 2022 August 2022 July 2022 June 2022 May 2022 April 2022 March 2022 February 2022 January 2022 December 2021 November 2021 October 2021 September 2021 August 2021 July 2021 June 2021 May 2021 April 2021 March 2021 February 2021 January 2021 December 2020 November 2020 October 2020 September 2020 August 2020 July 2020 June 2020 May 2020 April 2020 March 2020 February 2020 January 2020 December 2019 November 2019 October 2019 September 2019 August 2019 July 2019 June 2019 May 2019 April 2019 March 2019 February 2019 January 2019 December 2018 November 2018 October 2018 September 2018 August 2018 July 2018 June 2018 May 2018 April 2018 March 2018 February 2018 January 2018 December 2017 November 2017 October 2017 September 2017 August 2017 July 2017 June 2017 May 2017 April 2017 March 2017 February 2017 January 2017 December 2016 November 2016 January 2013 October 2011 September 2011 August 2011 July 2011 June 2011 May 2011 March 2011 January 2011 December 2010 October 2010 September 2010 August 2010 July 2010 June 2010 May 2010 April 2010 March 2010 February 2010 January 2010 December 2009 November 2009 October 2009 September 2009 August 2009 July 2009 June 2009 May 2009 April 2009 March 2009 February 2009 January 2009 December 2008 November 2008 October 2008 September 2008 August 2008 July 2008 June 2008 May 2008 April 2008 March 2008 February 2008 January 2008 December 2007 November 2007 October 2007 April 2007 March 2007 February 2007 January 2007 December 2006 November 2006 October 2006 September 2006 August 2006 July 2006 June 2006 May 2006 April 2006 March 2006 February 2006 January 2006 December 2005 November 2005 October 2005 September 2005 August 2005 July 2005 June 2005 March 2005 November 2004 October 2004